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Chronic, debilitating migranes.. someone please help.

This is a discussion on Chronic, debilitating migranes.. someone please help. within the General Off Topic Discussion forums, part of the Life Beyond Horses category

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        08-17-2013, 04:08 PM
      #11
    Yearling
    I'll have to try that, thank you!

    Does anyone else have some suggestions?
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        08-17-2013, 05:22 PM
      #12
    Teen Forum Moderator
    I'm a victim of migraines too, as well as normal headaches. Normal headaches every day, all day, with rare breaks, and migraines 2-3 times a week in the summer, 3-4 during the school year. Same symptoms as you.

    Have you gone to a migraine specialist yet? I've seen two and I've had an MRI that turned out fine as well. Its super frustrating. Food definitely isn't my trigger, as I'm on a very bland, careful diet anyways due to GI problems. Do you have tunnel vision with your migraines as well?

    One thing you MIGHT try is large doses of Magnesium and Riboflavin (B12). Ask your doctor first, but apparently taking those two things reduces swelling in the head which causes migraines and it can offer some help with controlling the migraines in adolescents. Another idea would be trying Imetrex.(sp?) You take it as soon as you feel the migraine coming on, with 3 ibuprofen tablets. The down side to that is how many pills people like us have to take since we have frequent migraines...and its expensive. I ended up just using it for the very worst ones when I couldn't afford to just try to sleep it off. For example, during school. I ended up quitting both the magnesium/riboflavin and the imetrex though because the vitamins were oddly causing stomach cramping for me, and the imetrex got rid of my migraine but caused a sharp pain (like a pinched nerve or something) in my neck. Just because they didn't work for me doesn't mean they won't work for you though.

    Strangely enough, pressure on my head near my temple and the base of my skull help me as well. Its weird isn't it? Most of my migraines and headaches stem from around my eyes though, and right above them.
         
        08-17-2013, 05:40 PM
      #13
    Yearling
    Mine are behind my eyes too! We have too much in common lol. I can't take Imitrex either, it makes my whole chest, neck, and the back of my head tight. I almost had to go to the ER because I started panicing because it was hard to breathe.

    No, I haven't seen a Migrane specialist.. I don't even know if I could find one. I had to drive an hour just for the Neurologist.
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        08-17-2013, 07:07 PM
      #14
    Teen Forum Moderator
    That's exactly how it is for me. The neck tightness and back of my head hurting. IMO it was worse than a migraine because I didn't know what it was! My chest didn't hurt though, thankfully.

    I'm beginning to think you and I are clones or something. LOL. Both in Texas, same general health issues, both 17.... hmmm. Long lost twin? :O

    Bummer that you don't have many specialist near you...not that they do much good. I've had tons look at me and I'm no better off, just a few thousand dollars in debt! Haha.

    One thing that does help me with the nausea from migraines SOMETIMES is the scent/taste of strong peppermint, so I drink strong peppermint tea and use the oil for the scent. You might try that.
         
        08-17-2013, 08:26 PM
      #15
    Yearling
    I know right! When is your birthday?! Lol.. I know. I have plenty of Doctors and nothing helps.

    I'll try the peppermint thing!
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        08-17-2013, 09:12 PM
      #16
    Super Moderator
    You should keep a food diary as it can often be triggered by a combination of foods not just one specific food
    I found that it was eating dark chocolate and drinking red wine at the same time that caused my migraines.
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        08-17-2013, 10:21 PM
      #17
    Banned
    Searing pain in one eye or both?
    Comes on at the same time nearly every day?
    Lasts about the same length of time?
    Ibuprofen and Acetominophen won't touch it?

    Answer yes to most of these?
    I'd seriously look into cluster headaches, a whole different ball game. I suffered with these EVERYDAY for four months before I was diagnosed. The optometrist thought I had glaucoma because I thought my eyeballs were going to explode. Ended up at a specialist, diagnosed cluster headaches and treated for a year to break the cycle. Medication worked immediately.

    Cluster headache - Wikipedia, the free encyclopedia
         
        08-17-2013, 10:41 PM
      #18
    Foal
    Try this! M-Grain Essential Oil | Young Living Essential Oils

    Believe me it works!
         
        08-17-2013, 10:56 PM
      #19
    Weanling
    I would try to eliminate gluten from your diet entirely as it can be a huge cause of migraines....you should know after 4-6 weeks although they say the immune response it creates can last 6 months.

    I am celiac and gluten intolerant and had many symptoms go away when off gluten (almost everything processed contains it - it can even be in salad dressing etc. so you have to do your research).

    Dr. Oz had a show on it this past week and the Dr. Who was on mentioned that no test will tell you - you just have to eliminate it and see. It seems hard at first but becomes easier all the time and it's WELL worth it if it works.

    Good luck!
         
        08-17-2013, 10:57 PM
      #20
    Yearling
    I started having migraines when I was 12 years old (I'm 39 now). Just like you my mom took me to every dr, they ran tests, which all came back normal. They gave me pain meds and sent me on my way. I lived with these headaches for years, missing events and functions because my headaches were too painful and if I pushed myself I would be nauseous and vomit. I got married had 2 children and was still looking for relief. In 2006 I was diagnosed with Lupus and it was then that we found I have Central Nervous System Lupus and Lupus Vasculitis on my brain. Basically I have inflammation on my brain caused by lupus, but we can now treat my headaches!

    Keep searching for that ONE Dr. That will listen to you. Do not waste your time on Dr. That are not listening. I wasted many years listening to Dr. That were not listening to me!!
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