Crohns Disease and strange symptoms of...what? - Page 5
 
 

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Crohns Disease and strange symptoms of...what?

This is a discussion on Crohns Disease and strange symptoms of...what? within the General Off Topic Discussion forums, part of the Life Beyond Horses category

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        07-16-2013, 08:21 PM
      #41
    Teen Forum Moderator
    That's very interesting...and it would make sense too. I have pretty bad acne as well as the other problems if I'm not SUPER careful about making sure I wash my face 4-5 times daily with certain soaps and the mouth ulcers seem to play up more when my GI tract is mad too. The skin problems (including dry scalp as well) DID show up when my GI tract started messing up as well, and the loss of eyelashes started at about the same time as the facial ulcers.

    Its all just so complicated! The blisters on my face resemble fever blisters that you might get on your lips I get those quite often too, and they're always severe and cause fever) very closely, so the doctor thinks they're the same strain. Herpes labialis I think? How they're related to my intestines, stomach, and esophogus though? I really don't know.
         
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        07-16-2013, 08:37 PM
      #42
    Yearling
    Quote:
    Originally Posted by Endiku    
    Thanks for all of the different ideas guys. I really appreciate it. I'll research each of the things that you mentioned, as I'm really, really ready for some relief.

    Tracer, does your sister have anemia? I ask because even on iron supplements, I am always boarderline anemic which affects my energy significantly. I also have high cholesterol (genetic, I'm partially Vietnamese). I can not eat acidic fruits, drink fruit juice, or drink soda as it tears me up and HURTS. I also cannot handle much red meat without feeding sick (I eat a lot of fish and chicken) and I've gotten to the point of not being able to eat fast food or resteraunt food at all because of the cramping afterwards.

    Its so strange because I sound a LOT like your sister. I didn't mention it but I am CONSTANTLY getting strep throat and throat infections (negative strep but still pain) and as I already said, I have very weak lungs and bronchioles. However, I do not have asthma unlike both my sister and my mom.

    I'm actually worried that my gallbladder was not the issue, Crohns was, and now I don't have the organ which is just stressing my body even more. :/ And now I have all of these allergies. How they're related, I don't know...but they all started when I started having what I thought were gallbladder problems.

    The constant sickness makes me feel aweful, and my regular doctor (who I deeply dislike, but I'm a minor and my mom likes her for whatever reason so I'm stuck with her) likes to blame me for everything. She says I always have strep because I don't wash enough, but I SWEAR I do. I wash my hands thoroughly at least 10 times a day, brush my teeth 3-4 times a day, use Listerine, shower daily, keep my room tidy, use lysole... but she makes me feel like this is also my fault. ALL of my doctors also like to blame my illnesses on stress, and while I DO handle stress poorly I've made drastic changes to help me learn to cope with it better and I see no changes. And how can ALL of this be from stress? All they tell me is 'deal with your stress. Don't be stressed. Don't do anything and it will get better' but life just doesn't work like that. I have a job, horses, a family to take care of, school (I have learning disabilities too), and other typical teenaged problems. I can't just not do anything or not be stressed. Its impossible!

    MissyMay, no I am not Mediterranean. I'm unsure of what my mom is, though we think she may have some irish in her (very pale, freckles, reddish hair. Her mom and grandmother are the same way) and my dad is Vietnamese.

    We do have a LOT of history of genetic problems though unfortunately, on BOTH sides so I really got a double whammy when it came to the gene pool. Both of my siblings are healthy as can be, with the exception of one having asthma. In our family history we have GERD in literally all of my dad's side of the family, lactose intolerance (I however, am not lactose intolerant. I can not drink lactose free milk either) because of the Asian side, cardiac disease, fibro myalgia, chronic migraines, osteo proses (sp?), liquid around the heart and lungs, and GI issues. So I could have anything, honestly xD its pretty awful. If we were a horse breeding operation we would be the lowest of the low backyard breeding programs. LOL. No immediate family member of mine has Crohns though, as far as I know.

    Darrin- I sure hope that's not what I have :/ it looks horrific. I don't think I match most of the symptom's, but I guess its always possible.

    As for Celiacs disease, I was tested twice for both Celiacs and for just an allergy and they came back negative. But like you all say, its possible that I could still be intolerant to it! The weird thing though, is wheat (and other carby things...specifically saltine crackers) is one thing that makes me feel a bit better. It coats my stomach for a short time and relieves the burning caused by so much bile, and I don't have reflux from them. I go through a box of saltines every two weeks or so because they're sort of my 'turn to' food. I could always try going off of wheat for a week though, just in case. I'm willing to try anything.

    As for reflux medications, yes I've tried Nexium as well as all of the over the counter reflux/heartburn pills. None work, so I was prescribed a high dose of protonics that help if I take them religiously. I am currently taking a dose of '80' daily. 40 in the morning 40 at night. This causes me to be very dizzy though, which I hate.

    For a short time I was on Carafate (sp?) which was supposed to counteract some of the damage to my stomach lining by coating it before I ate, but it was insane to try balancing that with my Protonics (the neutralize each other. I can't eat without taking protonics, but I was nauseated and burning without the Carafate) and I began throwing it up for some unknown reason every time I took it, no matter if it was liquid or pill form. So I quit.

    Currently my medications are limited to the protonics, water kefir (I've found it helps in the slightest amount), and a nonsteroidal antibiotic that has the affect of changing the motility of my bile SUPPOSIVELY, but I don't think it works and it makes me dizzy too.

    Wallaby, Excedrine is one migraine medication that I can handle, and I take it a LOT. I take 1-2 daily for my daily headaches because I have them no matter what, all day every day, but most severely in the morning. They think I'm addicted to it now and have rebound headaches from it, but I can't function without it (crippling headaches). It, however, is also damaging my stomach lining, so its really a vicious cycle that I've gotten into. I took myself off of NSAIDS for a month last year to see if my stomach pain went away and the burning lessened, but nothing else changed.

    Go see a Natropath, they will get to the root of the problems. They look at the body as a whole, instead of treating the individual symptoms. What you have will not be fixed over night but I'm almost positive they will find out what your problem is, and a way to treat it... We know Regular Medical doctors, all I can say is that they have their uses, but are taught NOTHING good about nutrition.

    Think about a horse during the winter who might have scruffy hair, you could probably find a medicine or drug that you could use to treat that symptom, research makes you look up more symptoms.
    Then you find out that he's got lice, so then you get another drug to treat that, but then if you research it you will find out it actually lacks vitamin A, more research would indicate that if you let him fill up on grass during the summer, (and feed A throughout the winter) that he would get it through nutrition, but that hay during the winter looses it's value fast.

    So the drugs really only treated the symptom, not the root cause which is what you need to find out. And yes, the example is really stupid, but if you get the drift then it served its purpose.

    Really, what could one visit hurt? Any Doctor that blames the patient for causing the problem, really is just saying that he has no idea what is the problem is.

    My brother had/has a weird spinal cord injury, one of the things was that since he could not walk he also shouldn't be able to feel his toes, feet, etc. but he could/can feel, which made them say the feeling was all in his head that he was making it all up. They just didn't know what the problem was, but wouldn't admit it for anything, yet they wanted to do surgery on about everything. Grrr

    I hope you get better, it must be awful to feel that bad all the time!
         
        07-16-2013, 08:44 PM
      #43
    Yearling
    Quote:
    Originally Posted by Endiku    
    What frustrates me the most though is that my current GI doctor doesn't seem to see all of this as a big deal, and none of the doctors are working together to look at ALL of my symptoms (skin, hair, stomach problems, intestine problems, migraines...) and see if they may all fit together. They want to evaluate and treat each thing symptomatically, which is NOT working.

    This is exactly what Natropaths will help with totally!!! They are all about looking at all the symptoms and going from there. Really, check them out. I really, really think you will find your answers!
    Endiku likes this.
         
        07-17-2013, 01:42 PM
      #44
    Teen Forum Moderator
    I'll definitely keep trying to convince my mom that we need to try a naturopath doctor, EmilyJoy. Your example makes a lot of sense considering that I JUST dealt with all of that with my filly, Kenzie xD she came with a host of deficiencies and horrific hooves/skin, but after fixing her nutrition to where she's getting the right amounts of everything, she's done a 180 and I swear her skin and hair are the softest on the farm. She always has people come up, stroke her mane and go 'O.O that's softer than MY hair!' its great xD and its just because I took time to figure out what she was lacking (vit A, biotin, and balanced Amino acids/omegas).

    Do you know if Naturopath doctors are ever covered by medical insurance? At this point that is a very big deal for us because we otherwise can't really afford anything (which is why the chiropractor is a no-go.) so that severely limits us.
         
        07-17-2013, 01:58 PM
      #45
    Green Broke
    Quote:
    Originally Posted by Endiku    
    I'll definitely keep trying to convince my mom that we need to try a naturopath doctor, EmilyJoy. Your example makes a lot of sense considering that I JUST dealt with all of that with my filly, Kenzie xD she came with a host of deficiencies and horrific hooves/skin, but after fixing her nutrition to where she's getting the right amounts of everything, she's done a 180 and I swear her skin and hair are the softest on the farm. She always has people come up, stroke her mane and go 'O.O that's softer than MY hair!' its great xD and its just because I took time to figure out what she was lacking (vit A, biotin, and balanced Amino acids/omegas).

    Do you know if Naturopath doctors are ever covered by medical insurance? At this point that is a very big deal for us because we otherwise can't really afford anything (which is why the chiropractor is a no-go.) so that severely limits us.
    Depends on your insurance. All but my last employer's insurance covered alternative medicines. Unfortunately if yours doesn't cover chiropractors it probably doesn't cover naturopath either.
    EmilyJoy likes this.
         
        07-17-2013, 02:23 PM
      #46
    Yearling
    If you can afford it I would recommend it. You aren't getting anywhere doing what you're doing now, at least the first visit would let you know how they are going to treat etc. Also the your case may prove that not only you lack nutrition or have imbalances but you may have an over-load of toxins. I'm not a doc so I can't say, but at least I would get one visit.
    Endiku likes this.
         
        07-18-2013, 02:48 PM
      #47
    Teen Forum Moderator
    Just as an update, my three thyroid tests came back normal. That's a good thing right! Now my normal pediatric physician in convinced this is all in my head though. Right.

    Also, the blister type things have started appearing (smaller) on my head as well. Great. I have another appointment with my doctor on Monday for them, but I'm not sure she's being all that proactive about it.
         
        07-25-2013, 03:53 AM
      #48
    Trained
    Endiku I saw this article and immediately thought of you.
    Genetically Modified Corn - Allergies to GMO Corn - ELLE

    How you doin?
    Posted via Mobile Device
    Lockwood and EmilyJoy like this.
         
        07-25-2013, 08:45 PM
      #49
    Teen Forum Moderator
    Wow...that's crazy O_o and really scary. The fact that we eat genetically mutated things in pretty much everything we eat, without even knowing it is insane. I wonder if I might have an intolerance to corn like that lady... I don't have the terrible muscle/bone pain or hand problem, but I do have a lot of the other issues she did. It might be worth looking into. Thank you for that link.

    I'm not doing too terribly, but I am having one of my bad weeks as far as eating goes. My mom has started making me count the calories I take in so that she can monitor how much I'm eating, but its disheartening. Even with the half of a Boost protein shake that I drink (they make me feel awful so I can only get half of one down without throwing it back up) I'm only getting 5-900 calories a day on my bad weeks, yet I'm still working and walking 3-4 miles a day as part of my job (I also wear a pedometer to see how active I am), lifting 3-4 50 lb feed bags, lifting boxes, etc., which easily burns the same amount of calories as I'm taking in.

    Actually, I'm surprised I'm not thinner than I am. I don't really look all that thin unless I'm wearing a close fitted shirt, and my ribs show quite a bit (you can feel them from my back and my front unfortunately) but my arms and legs are the same as they've always been. I must have a really slow metabolism...which I guess is to my advantage! Lol

    I have to admit I'm having some confidence issues though. With no eyelashes and now the sores randomly popping up on my face or scalp, I feel disgusting. I need my hair cut but I just can't bring myself to go to a salon (even a walmart one) and risk them seeing one on my head and freaking out or something.... :/
         
        07-26-2013, 03:37 PM
      #50
    Weanling
    Autoimmune disorders suck. Are you doing a specific food diary to find things you can eat? Are you doing bland, low fiber stuff? My friend with Crohn's can't do much fiber. It took her a while to find that fruits and veggies in particular were hardest for her when she was having a flare up. I'm not saying it will be the same foods, but hopefully you'll find something. I hope you get something figured out.

    PS: I've got celiac, and can't have dairy (cross reaction to casein). When I get glutened I take a bunch of fish oil and probiotics, and eat pretty bland, like peanut butter and rice crackers. I also like kombucha. It makes my stomach feel a lot better. No idea if any of this applies for you, but Crohn's and celiac are similar, except that celiac has a specific trigger (gluten).
         

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