Crohns Disease and strange symptoms of...what? - Page 6

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Crohns Disease and strange symptoms of...what?

This is a discussion on Crohns Disease and strange symptoms of...what? within the General Off Topic Discussion forums, part of the Life Beyond Horses category

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    07-26-2013, 06:12 PM
Teen Forum Moderator
Yes, I have a food diary. It appears to me that dairy, all nuts, cinnamon, and pears are huge no nos that will make me sick for an entire day or longer. Fruits with a lot of acids (basically anything besides bananas, peaches, and sometimes cherries) are very likely to make me sick, and red meats tend to make me sick. Fish and chicken are usually ok. Fats and grease make me very sick as well but that is a gallbladder thing.

So I'm basically restricted to a select few vegetables, grains, eggs, and chicken.

I can't drink anything but water and occasionally some Gatorade as well.
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    07-27-2013, 04:48 AM
With the range of foods that affect you, I can't help but think of reflux. When I was younger I had huge troubles with acid and had to avoid citrus and spicy foods.

But red meat... I mean, it makes me sick too, but that's because I just don't like most of it! You really are a mystery. You have to keep us updated. I'd love to get you to my doctor; he'd send you for every test under the sun, though it already sounds like you've had most of them.

Hopefully your scopes will shed some much needed light on things :)
    07-27-2013, 09:56 AM
Teen Forum Moderator
I do have severe reflux and I'm on protonix (80g a day I think?) for it, so I think its definitely a big factor at least in the digestive problems. I actually had reflux even as a baby, then it dissapeared for a few years and reappeared when I was 12 or so. Reflux doesn't explain the sores, hair loss, diahhrea (it does explain the vomiting though) migraines, or constant illness (bronchitis, pneumonia, colds, strep, etc. All upper respiratory) though so I can't help but feel there has to be something else too.
    07-28-2013, 08:16 PM
If you can read this while you are on your way to your relatives: Good luck! I hope some answers are found for you. {hugs}
    08-17-2013, 08:00 PM
Teen Forum Moderator
Well I have my colonoscopy/endoscopy in just a few days... This next Thursday. Oh joy! I'm not looking forwards to it at all, but such is life!

My eyelashes were just starting to grow back, but they're falling out again, so that's a big bummer... heres what they look like now. There are more on the right side than the left, but they're super short and brittle. The left has almost none.

This whole ordeal has taught me how to disguise my eyes with a buttload of make up though XD most people can't even tell when I have the make up on

I haven't had many more of those weird face sores though, so that's good. I did have to give in and cut my hair differently/shorter since I have a lot less hair than I did when I was healthy, but it doesn't look too bad so I'm glad for that at least.
    08-17-2013, 08:07 PM
Well just keep a stiff upper lip, hopefully you'll be out of the woodwork soon!
    08-17-2013, 09:22 PM
I have no advice or anything, I just wanted to be here for support. Though you've got yourself a real good support system here already, what's one more? I'm sorry that you have to deal with all this stuff, Crohn's and other autoimmune issues just suck. Just keep your chin up, you'll get through it.
    08-18-2013, 12:03 AM
Here's hoping that the scopes show something that gives you a a definitive answer <3
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    08-18-2013, 03:59 AM
Let us all know how the scopes go, I myself had one yesterday due to not being able to eat anything, they bounced between the idea of cystitis/gallstones/stomach ulcers and a couple other things but found no answers so they discharged me and sent me home with no answers and more pills. I know im not going through as bad as what you are on the food side of things, but know I can sympathise with you to an extent.

Are they giving you a general anesthetic for both procedures or just a local and sedation? I highly, highly recommend a general if you get the option, after the ordeal I went through yesterday I really can not recommend it enough, though apparently I am harder to sedate than most, so my experience was not typical and I had crappy doctors, so I'll bet your experience won't be as bad as I had.
    08-18-2013, 11:16 AM
Teen Forum Moderator
Yes I'm having general anesthetic thankfully xD they didn't even mention not doing general on me so I'm glad for that at least!

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