Living Gluten Free in a Gluten Full Family - The Horse Forum
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post #1 of 121 Old 03-28-2014, 12:24 AM Thread Starter
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Living Gluten Free in a Gluten Full Family

Its 11 pm and I probably shouldn't be typing this now, but long story short, as may of you know, I have an unknown health problem that wreaks havock on my life. I have good weeks and bad weeks. I've been all over the country to try to figure out what I have, I've seen all sorts of doctors, taken all kind of medications...but so far we've come up with nothing. I have some symptoms of Chrones, and some similar to Lupus, but that is the closest we've gotten. I bruise very easily, constantly have joint pain, vomit frequently, have constant burning in my stomach, get headaches every single day and migraines at least twice a week, have slowly accumulated food sensativities/allergies to dairy, pears, cinnamon, and nuts, and get mouth and face ulcers regularly. My skin is horrible and I'm constantly bloated, gassy, and cramped. In a single day I can be both constipated to the point of crying to having diahhrea...multiple times. It REALLY inhibits my life.

And yet the doctors can see very little physically WRONG with me and are convinced its in my head.

For that reason I've gone to 'self treating.' I'm on the bare minimum of my medications now, only the ones I can't function without. I'm currently taking Cholestromine (6 g daily) suspension, and Protonix (high high high dose of antacid). I also take a daily excedrine, which I know is TERRIBLE for me...but I can not function without it. I can guarentee I'm addicted to the NSAIDs but at the same time I can't go around with a headache all day every day, getting worse by the hour until I'm bedridden. I work 20-30 hours a week and go to school full time. I can't just lay in bed. With the encouragement of my new boss, who's whole family is gluten free, I've been convinced to try going gluten free for four months. Why so long? Because, according to her, it will take a LONG time for my gut to heal and stop reacting, and it will take me a while to stop contaminating myself. I started yesterday, and I'm already hurting. I'm assuming this detox pain is normal though. Bad gas pain and burning, much like usual but more severe. But I'm willing to 'go through with it' in hopes this will help me.

Luckily my boss is stellar and gave me a 'gluten free care package' to start. It consists of home made gluten free bread made from chickpeas and guava beans, gluten free pasta, gluten free soy sauce (I'm asian, and gluten free granola cereal. BUT, in researching I'm seeing that all of the processed pastas and such actually cause problems too? Something about omega 6-3 ratios, inhibiting vitamin absorption (I'm anemic and probably calcium deficient because I can eat NO dairy whatsoever). So now I'm confused o.o

Even bigger problem, I live in a gluten infested home. I JUST turned 18 and I'm in high school, so I really can't afford to move out yet. I'm paid well but I have limited money for food. I don't know how to not be toxified again by my family. I can't cook in a seperate kitchen, don't really have my own utensils (but I'll buy them), etc., Its going to be so hard to cope.

So I guess the whole point of this post is that I'm looking for your stories. Did you have any of my symptoms, and did they go away/lessen with gluten free? Are you glad you switched? Is it hard? Do you live with gluten eaters? Is it possible to eat HEALTHILY gluten free without spending every penny I earn? I'm just looking for a light at the end of the tunnel I guess, because right now...this stinks! I'm SO limited on what I can eat. I know I'm malnutritioned. Are there any good websites of information you all can pass on? Food ideas? Recipes? I'd love to hear!
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post #2 of 121 Old 03-28-2014, 12:50 AM
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Have you been tested for Celiac Disease? Had a colonoscopy for Ulcerative Colitis?

I have both... lucky me! LOL

You don't need a separate kitchen or separate cookware. Gluten can harbor in WOODEN utensils and cutting boards, so don't use those. It can possibly harbor in cutting boards as well, so if you want to make it easy, just invest in a cheap cutting board and only use it yourself.

You really don't need to go all hog wild trying to "replace" gluten. All the gluten replacements tend to be very processed and that's not easy on a system that's already upset. There's no gluten in meat, nuts, fruit, a lot of grains and vegetables. Focus on those. You don't NEED pasta to eat Spaghetti sauce, just a spoon!

Almond milk is a terrific substitute for dairy. Rice chex is gluten free and great with almond milk. Think of simplifying your diet, not making it crazy and complicated.
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post #3 of 121 Old 03-28-2014, 01:03 AM
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I'm surprised you haven't been sent to a dietitian to work your management from that angle. If it were me, I'd go off the deepend. I'd try meat and vegetables only. No milk,eggs,wheat,soy,processed,spicy,fermented, Cola,caffiene. Meat and vegetables, vegetables and meat. I know someone eith interstitial cystitis that had a 75% improvement in her condition with diet alone. The drugs she was on was breaking the bank. What everyone else eats shouldn't be an issue to where you need your own cooking utensils, pots and pans and fridge but they do need to be part of the solution and support your limitations.

If you find diet controls some of the symptoms than add back foods one at a time giving your body 2-3 Weeks to adjust. I would also be on a superior vitamin supplement.
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post #4 of 121 Old 03-28-2014, 01:06 AM
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I am in a similar position to you health wise, some different symptoms but many similar. I have tried lots with my diet, including cutting out gluten and going on an ulcerative colitis diet. In a house with lots of "bad" foods as well. You just have to be very strict with yourself! For me the biggest difference I notice is cutting out processed sugar :)
Try cutting out gluten, within a few weeks you should notice a difference :) I didn't notice a difference, I've also cut out dairy about 6 years ago and noticed a big difference with that!

Good luck! I really hope you can find out what is ailing you! Keep trying - I am going for Lyme testing next month and hoping that yields something! And more bloods next week uuugghh.
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post #5 of 121 Old 03-28-2014, 06:51 AM
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Here is a website How to Live With Gluten Intolerance: 6 Steps (with Pictures)

and Getting Started - Gluten-Free Living

A friend I used to know had a few of your symptoms and used to take this which helped some of the problems you mentioned, less expensive than yogurt (some brands of yogurt have gluten in them) Probiotic Acidophilus Complex 100 Capsules | Acidophilus/Probiotics Supplements | Puritan's Pride

I hope the diet or something will help soon

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post #6 of 121 Old 03-28-2014, 07:11 AM
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I know a couple of people at work with different levels of gluten sensitivity. It did not take them four months of gluten free to notice a change. They both felt much better after a week or two of gluten free.

It can't hurt to try and it's not all that hard to. There's a lot of gluten free recipe sites. I'm mostly gluten free but only because some of my favorite recipe sites are gluten free.
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post #7 of 121 Old 03-28-2014, 07:32 AM
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I've been known as "the gal w/the cast-iron stomach"-nothing much ever bothered me. But, now in my 6th decade-I'm doing a major overhaul as to what goes in my mouth. I'm lactose intolerant, have new allergies, lots more pain all throughout my body & my doctor says I'm pretty healthy-see you next year!
Well, ok. So, I'm back to researching everything I can find out about food. I'm reading Cave Women Don't get Fat by Esther Blum & The Doctor's Diet by Travis Stork, M. D. Both give lots of food facts & their effect on our bodies.

Neither one advocates our typical American diet, & the grass fed beef is really expensive in my area-nearly $12 a pound! That's beyond my budget, for sure. But we will build a chicken coop & have our own egg supply of much healthier eggs soon. But cutting out sugar & dairy, (but, not butter) could be a help to many sufferers. Yogurt, being fermented & having live cultures is usually ok, also. But not the sweet fruity stuff-haha.

How terrible to be burdened w/so many problems at such a busy time of your life. Hope you find some relief, soon.
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post #8 of 121 Old 03-28-2014, 08:07 AM
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It seems overwhelming at first but going gluten free is not to difficult, in a gluten consuming household. My husband is gluten, corn and dairy free he eats meat, vegetables and fruit. You don't need breads, pastas and other processed foods. Concentrate on eating whole foods. You can make soup on the weekend and eat it during the week for lunch or dinner. We eat a lot of potatoes and rice instead of pasta. Beans and rice are easy to make, a bag of beans is less then a dollar and rice is cheap. There are some milk substitutes out there that are tasty to help make sure your getting calcium, and eat lots of dark leafy greens also loaded with calcium and iron. There are some really tasty GF snack foods on the market if you portion them out they are not that pricey. I would think that your parents would be supportive of your health choices and could buy things that you can eat/should be eating anyway. I agree to get with a dietician and make sure your getting what you need nutrition wise and form your diet around what will work best for your health.
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post #9 of 121 Old 03-28-2014, 08:24 AM
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I'm not necessarily gluten-free, but my diet is pretty much free of it by design. I have been on the ketogenic diet for the past year and a half to manage several issues of mine, and it's worked out beautifully. Recently I've been making the move to dairy-free as well, and cut out almost all soda (the only time I drink it is when I go out to eat, which isn't terribly often these days).

I wish you luck on your journey! Luckily there are LOTS of great resources out there now, and with a little experimentation and planning you can have a wonderful array of choices. I don't eat grains but I am able to make pancakes, bread, and cake that is in line with my diet, so all is not lost! It's definitely an adjustment and sometimes the hardest part is getting it through someone ELSE'S head that NO, you cannot have a little tiny teensy bit.
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post #10 of 121 Old 03-28-2014, 08:53 AM
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I would like to go gluten free myself but with my jobs it's essentially impossible, I travel a lot which means eating out. Some places do now have a gluten free menu but not many.

Anyway, I have taken some steps mentioned above at home and thought I would add one thing. I still eat spaghetti but have moved to rice noodles. Not as tasty but it works.
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