RGP contacts/keratoconus
   

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RGP contacts/keratoconus

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  • Rgp keratoconus
  • Keratoconus rgp lenses

 
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    07-04-2011, 09:37 PM
  #1
Trained
RGP contacts/keratoconus

Hi all !

I was just wondering if anyone else here wears RGP contacts [rigid gas permeable] and/or has an eye condition called keratoconus.

About 2 months ago I was told I have keratoconus which is a condition where your corneas are shaped like a cone instead of being round and smooth. To help my vision I now wear RGP contacts. I have been having a lot of trouble with dirt and such getting under my contacts when im riding and also will double vision while jumping. [and on the computer !]

Does anyone have similar issues and/or suggestions ??
     
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    07-05-2011, 09:38 PM
  #2
Trained
Bump
Anyone have a similar experience ?
     
    07-05-2011, 09:47 PM
  #3
Yearling
I used to wear those, but they were too uncomfortable and dried my eyes really bad so I stopped. I had them because I'm legally blind, extremely nearsighted, and have a horrible astigmatism.
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    07-05-2011, 09:51 PM
  #4
Trained
What do you do for your sight now ?

I have been having trouble with dry eyes and the contacts getting dirty, so I take them out and clean them multiple times a day.
     
    07-05-2011, 10:24 PM
  #5
Yearling
I have glasses that cost almost $1000, but I'm trying new contacts with glasses over them. When I'm older and my eyes are finished growing, were going to look into some relaxation incisions in them since my eyes are too bad for Lasiks.

Do you have problems seeing the judge nod at shows? (if you show?) at 4-H I usually have to have some verbal thing or a hand gesture because I can't see the judge nod.
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    07-05-2011, 10:31 PM
  #6
Trained
Interesting. I can't have glasses [they said it plain wouldnt help with the condition I have] or lasiks [bc of deformed cornea, its too think in places]. If my eyes get worse I could have a corneal transplant but im really trying to avoid that.

I don't do 4h. I mostly have trouble because lights are really big and blurry and with double [or triple or more] vision and I can't really read road signs. I can't legally drive with out my contacts and I probably shouldnt drive at all at night. If the lighting is perfect for me, I can see the true outline of things pretty well I just have trouble with the details. The problem im having now with riding is that sand and dirt is constantly getting under my contacts so I have tostop riding and sometimes get off to take them out and clean.
     
    07-05-2011, 10:57 PM
  #7
Yearling
Oh. I can't legally drive without my glasses or contacts either, but I also wouldn't dare.. Without them everything becomes colored blurry blobs.

Have you heard of/looked into the hard contacts with soft outer skirts? I don't know if you would be eligible for them, but I hear they're more comfortable and less drying and whatnot.
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    07-11-2011, 05:12 PM
  #8
Foal
My step-son has keratoconus. He lives in Tennesse on a ranch with his mother and rides almost every day. What we wish we would have known sooner is 2 things: 1) keratoconus is progressive, but there is a 30 minute office treatment that stops the condition from getting worse, called Holcomb C3R, you can learn more at www.KeratoconusInserts.com 2) we wish we had learned about the Synergeyes lens sooner, this is the hard lens with a soft skirt. He says he rarely has issues now with dirt under the lenses. You can find a doctor that fits this lenses at: www.Synereyes.com

I encourage you to learn about the treatments for Keratoconus at www.KeratoconusInserts.com Keratoconus is a progressive condition. We did not learn about these treatments until my step-son could no longer tolerate wearing his RGP lenses at all. His vision had got so bad that he needed 3 treatments to get his cornea in good shape so he could wear contacts. However, if someone gets treated early apparently they may only need the Holcomb C3R. We flew my step-son to Los Angeles for a 3 day visit to have treatments. When he turns 25 we are going to fly him back to have permanent contact lenses placed inside his eye, called Visian ICL. Dr. Brian Boxer Wachler developed all these alternatives for keratoconus. We were told the only option for my step-son was a cornea transplant and for the rest of his life he would have to be worried about getting hit in the eye and avoid the body rejecting the transplant. These treatments were really quick for recovery. Now with his new Synergeyes lenses he sees 20/20 again and can wear lenses for 14-16 hours a day.

Take Care
     
    07-11-2011, 05:26 PM
  #9
Showing
I've never heard of your condition, Gypsy.

I wear bifocal soft lenses, and I find they're much easier on my eyes when I'm riding or cleaning stalls than the old RGP ones I used to wear.

Are soft lenses even an option for you, or not?
     
    07-12-2011, 08:40 AM
  #10
Trained
Speed racer - no soft lenses are not an option for me

MrsN - thanks so much for all the information ! I went to my eye doctor yesterday to recheck the fit on my lenses and we are still having trouble with the left eye. My right eye is significantly better than the left, but she is concerned about the left eye. I will check out those 2 sites. I really like my eye doctor but I don't feel that she has very much experience with keratoconus, which concerns me a lot ! I would very much like a hard lense with a soft skirt as I am currently getting dirt under my contacts multiple times a day and it HURTS ! The other day I was riding and got sand in both eyes. It sucked bc I had to stop and I couldnt open my eyes bc of the pain, the horse I was riding is a 2yo who is not broke.

That is great that your step son is 20/20 with his new lenses ! Do you know how long they can last before you have to replace them ? My doctor said my RGP lenses could last 5yrs if there were no changes in my eyes.

Thanks again for all the info ! I really appreciate it.
     

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