update on my mom

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update on my mom

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    07-29-2009, 10:52 PM
update on my mom

I've really been trying hard to keep a positive outlook on things & hoping for the best but with each passing day I realize my mom is going down hill more and more.
I did write letters to State officials, a couple senators to be exact regarding her condition and the insanely ridiculous amount of time it takes for someone to get life saving treatment, the fact it seems they prolong it even longer for the uninsured etc.
My mom is down to 89.2 lbs she cannot eat anything literally and the doctors don't seem to get that. They ask "can you drink ensure?" like what part of nothing goes down do you people not comprehend!
She hasn't had a ct scan yet, she thought it was supposed to be tomorrow but no that was just a visit with her oncologist which btw they rescheduled to Monday. The dr's office said the ct scan was scheduled for August 10th...She isn't going to make it till then! She can't take care of herself any longer, she can't undress/dress, she can't bathe without assistance, she can't operate a can opener to even try to see if maybe she can get a spoonful of soup down. She looks like one of those starving people from some 3rd world country...and yet doctors keep dragging their heels like she has all the time in the world!
Well I finally get a call from someone with the State today telling me there may be a program my mom qualifies for to get assistance..I unloaded on him telling him this is been going on for 2 months and at this rate she will be dead before the ink dries on the application. I was rude to an extent but what do they think people are supposed to do? This isn't something from smoking or drinking or drugs this is a 90% curable cancer HAD they got on the ball and done something.
I'm sorry for the long post & such depressing news, it's just hard to take all of this in & not be able to do anything about it
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    07-29-2009, 11:19 PM
I'm sorry to hear that. I'll keep her in my prayers.
    07-29-2009, 11:30 PM
Green Broke
I'm so very sorry that your mother is falling between the cracks in the vast medical world! So unfair and frustrating.

I can only offer to keep you both in my thoughts and prayers and know that there are people out there that are thinking of you both.

Don't give up, keep fighting and screaming! Bless you both.
    07-30-2009, 11:26 AM
Ooh my gosh *hugs* I can't even imagine.. That has to be so hard for you. :( I don't know how some people can just stand by and let things like this happen, but it does happen...it's terrible. I really hope she can get help in time. Just stay strong for her and be there for her, but make sure you take care of yourself as well.
    07-30-2009, 12:41 PM
Super Moderator
Oh I'm sorry for that new update . I can only wish good luck to both of you. Keep fighting! Make it aloud, arouse commotion. Sometimes firm will can crush rocks.
    07-30-2009, 07:51 PM
Thanks you guys,
Today I've been on the phone on the internet and running around like a chicken with its head cut off! I called the dr he prescribed a pain patch so I think FINALLY maybe she can get some relief from all the pain and get some sleep....well I take it too the pharmacy to get it..umm it was over 500$!!! After her discount card paid 200 I still would have had to paid 365$ I had no choice but to walk out. Anyhow I am taking her next week to her appt and I am going to be a pain but I am insisting they keep her in the hospital
    07-30-2009, 08:02 PM
The frustration you are feeling is more than I can imagine. Keep screaming at the powers that be. Its unbelievable the cost of medical care and the roadblocks at every turn when you really need it.
You will both be in my prayers.
    07-31-2009, 07:45 AM
I am sorry Close2 about your mom and the run-around you are getting
For help for her.

My sister died in april of lung cancer, my dad was diagnosed with
Cancer of the bile duct. And now my SO is dealing with breast cancer.

I hope you can get medicial help for your mom. I understand how you
    07-31-2009, 08:58 PM
Super Moderator
Originally Posted by close2prfct    
well I take it too the pharmacy to get it..umm it was over 500$!!! After her discount card paid 200 I still would have had to paid 365$ I had no choice but to walk out. Anyhow I am taking her next week to her appt and I am going to be a pain but I am insisting they keep her in the hospital
That made me very frustrated and sad for you... I really keep you in my thougts!
    07-31-2009, 09:23 PM
Super Moderator
I'll keep you in my prayers.

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