There is a lot of confusion about this disorder. 2 days ago on my daughters 13th birthday we had to have her 2 year old QH put down due to this disorder. The skin on the horse literally rips from its body. We couldnt brush him, even with a soft brush because the skin would bunch under the brush and even rip open. You could pinch the skin on his neck and pull it out about 6 inches from his body. His mane bleached out and most of it fell out. When my daughter tried to ride him bareback (she only weighs about 60lbs) it would cause blisters on his back that tore open and left huge open sores. We had to finally put him down due to cutting a hind leg below the hock. The skin was so thin and stretchy that it just fell down around his ankle like a loose sock. Infection set in very quickly and there was nothing that could be done for him. UC Davis, and Cornell University will test for this disorder by submitting a hair sample from the horses mane or tail. This is a very easy, quick and inexpensive way (only 40.00) to know for sure if your horse is affected or a carrier. PLEASE do not breed to affected or carrier horses. This is extremely painful for the horse and always fatal, usually before the horse is 4 years old. AQHA registered this colt knowing that the sire and dam were both carriers of this disorder and they do not require testing of the foal before registration. Beware when purchasing young foals because this disorder usually appears when the horse is about 2 and progresses very quickly. Our horse would have been 3 in November. His breeding included Poco Bueno and Zippo Pine Bar crossed several times. Both of these stallions are confirmed carriers, and with the huge number of their offspring, the spread of this gene is massive. I have voiced my frustration and sadness of our loss to AQHA who have chosen not to reply. I hope this information will help others and eventually something can be done to eliminate the inbreeding that produces the disorder.