I so know what you mean!! ERU was my LIFE for a few months right after Lacey got diagnosed. I 100% understand. Good for you for being Lucy's advocate! It makes me really happy [but sad too since ERU is the WORST] to hear about your self-education.
I figure that the more of us there are that being vocal about this disease, sharing information, etc, the easier and easier it'll become for caretakers of newly diagnosed horses. At least that's my dream!
I also totally get what you mean about wishing for a less conventional route of treatment. I try to do a combination of both [as you might have read in some of my posts
], saving Bute and the harsher drugs for episodes and "wanna-be episodes". But it's sure hard!
My vet wasn't familiar with titer-testing horses but it's definitely something to ask your vet about! I mean, they have them for other animals and humans...why not horses? haha
A thought for your vaccinations might be to dose Lucy with maybe half the Bute your vet prescribes for an episode [for Lacey, upon discovery of an episode, my vet has me giving her 3 grams of Bute the first day, then 2/day until inflammation subsides, and then I wean her back on to her herbal pain stuff] to decrease any inflammation that wants to happen from the vaccine, and perhaps double up on any immune-boosting/anti-inflammatory supplements [I feed flax seed, MSM, and Apple Cider vinegar for immune function+anti-inflammatory] you're already giving...just to sort of preemptively "attack" back.
Of course, she may pop through her vaccinations just fine without a lot of help - since she was in the midst of an inflammatory reaction+immune system freakout last time, the inflammatory nature of the vaccines just made it worse. This time, since the vaccines are going to be the 'only' "bad guys," it hopefully won't be nearly as bad.
I would probably just treat it however you would treat an "uh-oh, does she look like she's heading towards an episode? I'm going to head it off with __x
__" situation, if that makes sense.
Also, I love that you're reading things I've posted about ERU! That's really so great. :)
I was so broken up when Lacey first got diagnosed and I wondered how on Earth we were going to survive it. From the beginning, 5 years ago, it was pretty obvious that Lacey wasn't just mine, she was mine to share with others. When she got diagnosed with ERU almost 2 years ago, I had a hard time imagining how we were going to continue share with the world in our "state" [we used to go to summer camps where we'd lead trail rides, she'd comfort the scared kids, and basically bring joy to everyone by "being a unicorn"].
Now I think our new work might be bringing hope/peace to owners of other ERU horses. Or at least, I can hope that we might be able to do that!
And.....I just wrote you a novella back! :)
Feel free to pm me if you'd like! To ask questions or just talk. I'm sure you can't tell, but ERU and "making it work" is kind of a passion of mine.