I am needing some help from my HF friends. As some of you may know or remember I have been having health problems for the last 4-6 months. I was diagnosed with Lupus about 7 years ago so health issuses are not new to me and my family.
In March it became increasingly difficult for me to breathe, now to be honest, I'm not a thin person (as one Dr noted, just incase I forgot 😳). Anyway after 5 hospitals, over 20 Drs and almost 20 CT Scans, MRI, and X-rays (yes if you turn the lights off I glow due to all the radiation 😱). Due to 7 years of prednisone use and having to get my labs checked every 7-12 weeks I have no veins lefts, so needless to say I am a hard stick. I try to be a good sport about this, it wasn't the nurse or phlebotomist fault my veins $uck so I try to allow as many sticks as they will try, as long as they are professional and are actually trying (I know most facilities only all 2-3 sticks per tech, but that can be too time consuming). With 3 different techs/nurses I've had as many as 12 sticks with still no access. (Appt for a port next week 🎉🎉)
After 13 days at Mayo Clinic in Rodchester, MN we have found I have been walking around with a "showering"(many little) of PE's in my lower right lung, a PE in my middle right lobe and a PE in my upper lobe (all right lung). A PE is a pulmonary embolism or blood clot in your lung. People typical do not survive a PE, let alone a showering or multiple, so yes I am definitely counting my blessings.
Mayo is wonderful!!! But I do have to say, they were even in agreement that after reviewing all my radiology CDs they did not see these on the past reports. I will be going back to Mayo in August to fiqure out WHY I'm having PE's, I may not survive the next one. And I'm young!! I've got things to do 😊.
OK so my real question, as it looks now I may be on Oxygen for the rest of my life. Does anyone here ride with O2? Where do you put it? Are there any problems you have that I wouldn't think of? Our horses are what have been getting us out of the house and given us pure enjoyment. We live in Southeastern Oklahoma, so we have beautiful riding everywhere.
I would love to hear other stories, thanks.
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