I'm tired of being sick!
I will try to make this into as short a summary as possible... 4 years ago I caught a virus which completely destroyed my GI tract- Diagnosis was GI partial paralysis from my stomach to my large intestine. Mayo Clinic told me I would be better in 2 years. That never happened.
For the last year my weight has mostly stabilized (thanks to a great GI doctor and experimental meds), but now I have new issues... I gradually developed carpal tunnel in my wrists, and developed some weird leg collapsing issue. My legs will randomly collapse (usually partially) while I walk... I also started getting migraines. All neurological testing came back normal. The doctors could not explain it, so I went back to Mayo again... Now I'm just waiting to get in with the specialists as they are booked up for months!
Just in the past few weeks, I started drinking an insane amount of water which goes right through me. I realized this was a problem when Mayo wanted me to send in a 24 hour urine sample, only I filled the container in 12 hours... I didn't actually realize I was drinking that much before that!
Mayo also sent me my bloodwork results which were all over the place- several values were slightly outside the normal range. TSH (thyroid) was high, Calcium was slightly high, lymphocytes were slightly high, Total protein was high, some other abnormality on the protein electrophloresis, urine specific gravity was low... They aren't returning any of my calls to tell me what any of this might mean. :-(
The next doctor I'm scheduled to see is a neurologist, but I don't even think this is a neurological problem... The GI doctor is booked til next year so I can't see him...
I feel terrible. I'm doing the freezing/burning up thing (but no fever), having severe fatigue and sleeping 16+ hours a day, and my legs nearly gave out on me 3 times today... It is not malnutrition as that part of my bloodwork looked great. It is not blood sugar, and it is not blood pressure. Autoimmune testing (ANA, and several other antibodies) have all been normal. Thyroid maybe? Some sort of kidney problem? Both?
To top that off, my boss fired me two weeks ago- someone volunteered to do the work for free. :-x And my young horse has lameness issues which most likely aren't fixable. It's either her hips or spine, and not a good prognosis. Although at this rate maybe I should just retire from riding completely.
I'm just exhausted. I don't know why I have to have so much bad luck... I just want to feel better and go ride my horse. And sleep through the night without waking up with a stomachache.
I feel so sorry for you.:cry:
But I can't do much to help (sorry).:-(
Is that the only place you can be seen? I know they have a good reputation and all, , but I would want to see a Dr much sooner than their schedule allows. You need some answers & some help!.
I am so sorry you are feeling so crummy! I do understand. I was diagnosed with Lupus 7 years ago, it affects my joints and I have lupus vasculitis on my brain so I get debilitating headaches.
Mayo is a great hospital/clinic, but you need relief now. Do you have a primary care Dr. you are working with? If not find one, one that can see you soon, say within the next 2 weeks. If you do have a PCP are they helping you, because from the sound if your post I don't think they are, I think you need to find a new PCP. If a Dr is not helping you, do not be afraid to tell them it's not working or change Dr.s. A good PCP will help you and work with you until you are able to see the specialist you need.
I hope you feel better soon and get some relief.
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That all sounds terrible ): I hope they can figure everything out and make you better soon!
I got tired of feeling sick all the time and took my body's health into my own hands many years ago. It was a total lifestyle change towards something that not all too many people are doing, so at first, all the people I knew wanted to tell me of their fears and try to project them upon me......almost as if they would prefer I stayed feeling like I did instead of doing something different, in which they had no understanding of. But that seems to be pretty common.....people fearing what they don't know so they try to keep you at their level by projecting their fears and angers at you. Not really too on topic here.....but if it's something that you're going to do, then it may help to prepare mentally and begin to grow some thick skin. :-)
After years of trying many different things I've found what, IMO, is one of the best ways to heal the body. It's a matter of eating specific foods which are actually the optimum foods specifically designed for the human body. They cleanse the clogged up pathways in the body to get it functioning again. Once these clogged systems are functioning again the body can begin to build truly healthy tissue.
In all simplicity it's a matter of cleansing to remove obstruction and providing optimum nutrition for rebuilding.
If this interests you I would suggest you learn of the teachings from Dr. Robert Morse and Arnold Ehret.
Here's a latest video from Dr. Morse. It's two hours long and there's lots of good info in there, in which you can gain some insight into what he's teaching and doing to bring health to many people. Two hours is just the start BTW, if you really want to feel better and are willing to take your health into your own hands, then two hours is just the beginning of your research. ;-) Questions & Answers 200 - See Description for Details - YouTube
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