From the doctor's perspective, it used to require a biopsy to confirm the diagnosis of Celiac Disease. But now with the blood testing, it is not "required" to do a biopsy to diagnose someone with CD.
My dad was diagnosed with CD in 1991. It took them 5 years to figure out what was wrong with him, as it was not commonly known then like it is now. I was pretty little at the time so I don't remember much, but my mom was convinced she was going to lose him, he was so thin and weak and sick. Makes you think about all the past relatives who died early from "stomach issues" and things like that, when they probably just had CD.
My aunt (dad's sister) was diagnosed with CD about 2 or 3 years ago.
I myself have never been tested for it. My little brother was tested, and he did not have the genes for it. Since pregnancy is one of the biggest trigger factors, I'll be interested to see if I develop CD when my husband and I decide to have a family (provided I carry the genes).
I guess you could say I have a "sore spot" against those who choose to eat a gluten free diet, than for those with CD who are medically forced to. Nowadays its not as big of a deal as more and more companies are making gluten free foods, but I remember all the days with my dad in years past. Us kids would have cookies and cake and goodies to eat, and he could never have any of it. And for a long while, even noodles. We'd make separate food for us, and we'd make separate food for him. And we sampled it --- it never tasted as near as good as the real thing. As a child, I always felt sad that he couldn't eat the "good stuff" like us. Again, there's a ton more things available now than there were 20 years ago, and quite tasty stuff too, but it still rubs me the wrong way from those past experiences. Eat your gluten and enjoy it too, if you can!
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