finally have a diagnosis
 
 

       The Horse Forum > The Horse Forum Community > Rider Wellness

finally have a diagnosis

This is a discussion on finally have a diagnosis within the Rider Wellness forums, part of the The Horse Forum Community category
  • Dr. Frank Rice fibromyalgia study
  • Crazy sister in law says she has severe fibromyalgia symptoms

Like Tree4Likes

 
LinkBack Thread Tools
    10-29-2013, 05:34 PM
  #1
Yearling
finally have a diagnosis

After a fun filled day with Dr appointments, blood draws & tests, Dr says I have fairly severe fibromyalgia. Trying out a med & she says I should feel 100% better in less than a week. Still kinda freaked out & more than a little scared. Hopefully I'm headed in the right direction
     
Sponsored Links
Advertisement
 
    10-29-2013, 05:37 PM
  #2
Started
I don't know anything about fibromyalgi.. But at least you have a definite diagnosis and you have meds to help you feel better! Keep your head up. *hugs*
     
    10-29-2013, 05:39 PM
  #3
Trained
I thought Fibromyalgia had no diagnostic testing?

That it was more along the lines of..."Well, you don't have this...this...or this...And we don't know what it is...So lets diagnose Fibromyalgia and put you on X, Y, and Z."

^^^ BTW, That is NOT meant to be sarcastic, Im legitimately interested in this... (I promise)
Posted via Mobile Device
littrella likes this.
     
    10-29-2013, 05:43 PM
  #4
Yearling
We did blood work & other tests to rule out other things. Since I also have migraines, had to rule out brain tumors or anurisum (sp). Blood work to rule out vitamin D deficiency...
     
    10-30-2013, 01:50 AM
  #5
Foal
Sorry you have fibromyalgia. I have it too. No fun! At least you have a doctor who believes it's real and is willing to treat it. For me it was nice to finally have a diagnosis. I hope your treatment works well. They did a bunch of tests on me to rule out other things too. Then they did the tenderpoint test. Ouch! But at least I finally had a name for what I was dealing with. The challenge I run into now is that there are so many theories about what causes fibro and nothing definite. Some docs believe in it and some don't. Finding treatments that work is kind of like finding the right antidepressant--sometimes you have to try a bunch to find the right one or the right combo for you. It's a journey. Good luck. I'm happy to share my experiences and what's worked for me. And if you find something that works well, let me know. Sending hugs . . .
Posted via Mobile Device
littrella likes this.
     
    10-30-2013, 01:51 AM
  #6
Foal
Oops. Posted twice.
     
    10-30-2013, 08:18 AM
  #7
Foal
You have my sympathy.

My sister-in-law has this condition and she say that the only thing worse than the chronic pain was the "not being believed" that goes along with an invisible illness. Even once she had a diagnosis, it wasn't easy for some folks in her circle of friends to comprehend what she was dealing with on a daily basis. Thankfully, she has an excellent doctor and she is now doing well.

I forwarded her a copy of Dr Frank Rice's recent study, where he believes his team have found a "rational biological source of pain in the skin of patients with fibromyalgia". She found it very relevant to her but, obviously, each individual case is not the same as the next.

I wish you all the best with your treatment.
     
    10-30-2013, 02:56 PM
  #8
Weanling
I also have fibro, going to different doctors and talking to people trying to figure out what was wrong with me was very depressing!! Finally I also got a diagnosis and that was wonderful to just know I wasn't CRAZY!!!

For me personally, (each fibro case is different) I had to figure out what caused my fibro to flair up.. then I figured out that if I worked hard, I had to REST hard. Good rest was the key to keeping my fibro bearable. Good luck in your quest for relief!!!

Rhonda
     
    10-30-2013, 06:56 PM
  #9
Yearling
My Dr gave me Savella. I have a history of reacting badly to meds, so we are only doing 12.5 mg once a day. I haven't really been in what I would call pain, just sore all the time. My biggest problem is how exausted I've been. For the last month, it's been hard for me to stay awake past 6:30pm. Today was my 2nd day on meds, we'll see how it goes
     
    10-30-2013, 07:05 PM
  #10
Green Broke
I have fibro as well. I have it fairly severe and I have crohn's to top it off *head desk*

I am on amitriptyline for my fibro. I get the crippling migraines that come with it as well. It was a process of elimination for me to get diagnosed. I had CT Scans, MRI's, Spinal Taps, x-rays, blood work... the list goes on. The final prognosis was fibromyalgia and I have somewhat gotten control of it over the last 3 years.

However a new diagnosis of crohn's has turned my body upside down.

There is a group on facebook for fibro, I suggest "liking" it. They post lots of interesting facts and articles about fibromyalgia and its actually pretty neat as they also talk about different ways of coping with it. https://www.facebook.com/pages/Fibro...11775228998691

The only downside to the diagnosis is a lot of people don't really take it serious. When you say you have fibro they tend to roll their eyes and go "yea that's what they diagnose you with when they can't figure anything else out." it can be frustrating, however more and more awareness is being brought to it and alternate therapies are being discovered.

Some things that have helped me:

Making sure I get at LEAST 8 hours of sleep every night
Napping when my body says "nap!"
Avoiding gluten
Avoiding alcohol
Keeping active

And most importantly... Listening to my body. You REALLY need to be tuned in with your body and listen to it. It will tell you what your limitations are.
littrella likes this.
     

Quick Reply
Please help keep the Horse Forum enjoyable by reporting rude posts.
Message:
Options

Register Now

In order to be able to post messages on the The Horse Forum forums, you must first register.

Already have a Horse Forum account?
Members are allowed only one account per person at the Horse Forum, so if you've made an account here in the past you'll need to continue using that account. Please do not create a new account or you may lose access to the Horse Forum. If you need help recovering your existing account, please Contact Us. We'll be glad to help!

New to the Horse Forum?
Please choose a username you will be satisfied with using for the duration of your membership at the Horse Forum. We do not change members' usernames upon request because that would make it difficult for everyone to keep track of who is who on the forum. For that reason, please do not incorporate your horse's name into your username so that you are not stuck with a username related to a horse you may no longer have some day, or use any other username you may no longer identify with or care for in the future.

User Name:
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.


Old Thread Warning
This thread is more than 90 days old. When a thread is this old, it is often better to start a new thread rather than post to it. However, If you feel you have something of value to add to this particular thread, you can do so by checking the box below before submitting your post.

Thread Tools

Similar Threads
Thread Thread Starter Forum Replies Last Post
What's your diagnosis? franknbeans Horse Health 10 08-27-2013 08:36 PM
The Diagnosis is In: He Has Ringbone ShannonSevenfold Horse Health 57 10-05-2012 02:46 PM
EPM Diagnosis horsecrazy84 Horse Health 7 03-27-2011 12:23 PM
Anyone used Thermography to help in a diagnosis? starlinestables Horse Health 2 02-18-2011 12:15 PM
diagnosis ideas? laceyf53 Horse Health 12 01-05-2008 10:35 PM



All times are GMT -4. The time now is 03:46 PM.


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
Search Engine Friendly URLs by vBSEO 3.6.0