I will try to make this into as short a summary as possible... 4 years ago I caught a virus which completely destroyed my GI tract- Diagnosis was GI partial paralysis from my stomach to my large intestine. Mayo Clinic told me I would be better in 2 years. That never happened.
For the last year my weight has mostly stabilized (thanks to a great GI doctor and experimental meds), but now I have new issues... I gradually developed carpal tunnel in my wrists, and developed some weird leg collapsing issue. My legs will randomly collapse (usually partially) while I walk... I also started getting migraines. All neurological testing came back normal. The doctors could not explain it, so I went back to Mayo again... Now I'm just waiting to get in with the specialists as they are booked up for months!
Just in the past few weeks, I started drinking an insane amount of water which goes right through me. I realized this was a problem when Mayo wanted me to send in a 24 hour urine sample, only I filled the container in 12 hours... I didn't actually realize I was drinking that much before that!
Mayo also sent me my bloodwork results which were all over the place- several values were slightly outside the normal range. TSH (thyroid) was high, Calcium was slightly high, lymphocytes were slightly high, Total protein was high, some other abnormality on the protein electrophloresis, urine specific gravity was low... They aren't returning any of my calls to tell me what any of this might mean.
The next doctor I'm scheduled to see is a neurologist, but I don't even think this is a neurological problem... The GI doctor is booked til next year so I can't see him...
I feel terrible. I'm doing the freezing/burning up thing (but no fever), having severe fatigue and sleeping 16+ hours a day, and my legs nearly gave out on me 3 times today... It is not malnutrition as that part of my bloodwork looked great. It is not blood sugar, and it is not blood pressure. Autoimmune testing (ANA, and several other antibodies) have all been normal. Thyroid maybe? Some sort of kidney problem? Both?
To top that off, my boss fired me two weeks ago- someone volunteered to do the work for free. And my young horse has lameness issues which most likely aren't fixable. It's either her hips or spine, and not a good prognosis. Although at this rate maybe I should just retire from riding completely.
I'm just exhausted. I don't know why I have to have so much bad luck... I just want to feel better and go ride my horse. And sleep through the night without waking up with a stomachache.