It just keeps getting better *VENT**LONG* - Page 4
   

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It just keeps getting better *VENT**LONG*

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        08-23-2013, 11:44 PM
      #31
    Trained
    I hope they figure out what is wrong. At least in the hospital, you will get fluids. Get better now.
         
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        08-24-2013, 04:15 AM
      #32
    Started
    Quote:
    Originally Posted by Celeste    
    I hope they figure out what is wrong. At least in the hospital, you will get fluids. Get better now.
    Thank you Celeste, I was in there from 11.30am this morning to around 7.00pm tonight. They didn't give me fluids though, I thought they would but nope

    The doctor I got today was very good, he stood and listened to my answers when he asked a question, rather than butting in halfway through with his diagnosis. And he also stood and thought properly about everything I had told him.
    This particular doctor thinks I may have the upper scale of Inflammatory Bowel Disease, or that I have Crohns Disease.
    He is setting up an appointment as an outpatient with a bowel specialist in order to have a capsule endoscopy done to find out which one I have, he's confident I either have one or the other, and the reason he's so confident is that he himself actually has Crohns Disease.

    He has given me a whoooole lot of some type of medication to stop bowel cramps, and another one that is from the aspirin family to relieve bowel inflammation for a longer period of time than ibuprofen does, but is less harsh on the GI tract? I can't remember the names of the two medications he gave me. He also said that if I feel uncomfortable taking the aspirin type pill then I can take 1000mg of fish oil capsules from a health shop each day, that equates to about 6 tablets per day.

    I'm really excited to be getting somewhere but I don't want to get my hopes up just in case it turns out to be not what he thinks it is
         
        08-26-2013, 08:45 PM
      #33
    Foal
    Hopefully they'll help! You must be so sick of taking pills that don't seem to be doing much for you. :/ It is encouraging that you had a doctor you feel confident in, maybe since he was listening to you, he can make the right diagnosis! Stay strong hun and don't give up hope, we're all here for you and all the crap you're going through will settle eventually.
         
        08-27-2013, 04:08 AM
      #34
    Started
    Quote:
    Originally Posted by Dawn854    
    Hopefully they'll help! You must be so sick of taking pills that don't seem to be doing much for you. :/ It is encouraging that you had a doctor you feel confident in, maybe since he was listening to you, he can make the right diagnosis! Stay strong hun and don't give up hope, we're all here for you and all the crap you're going through will settle eventually.
    They are a little bit but I was really ill yesterday morning and not feeling so flash right now after having dinner, but it's a darn sight better than I was doing a few days ago not even being able to drink water. I'm on almost 40 pills over every 24 hour period, and it takes over 1/3 of an h2go bottle just to down my pills each time I take them (6am/12pm/6pm/12am) so at least I'm getting my daily water intake

    I have to admit though, I'm absolutely terrified about what they might find during the capsule endoscopy, I don't know anybody around me physically that has crohns or IBD, nor do I know anyone that knows anyone with it etc.
    I was really hoping it was just a gluten intolerance or something that I could manage easily, but if it is indeed either of these diseases then it's not so easily manageable as I had hoped.
    Though i'm even more terrified that they might not find what they're looking for and I'll be right back at square one.

    I don't remember if I put this in an earlier post, I think I did, but if I didn't then here it is... I withdrew from course, and rather than the relieving feeling I was expecting, I felt absolutely gutted, and I hated myself for being so weak and quitting when I should have soldiered on through it. But now I've realised that considering I don't even have the energy or concentration span to drive 20 minutes to course safely, it was in my best interests to leave the course to focus on my health, as I can (will) pick up where I left off next year at around this time

    -Oh, and I'm now devoting my time on the couch to hand-making soft baby toys from socks Right now I'm making a floppy eared rabbit
         
        08-27-2013, 07:22 AM
      #35
    Green Broke
    I hope you get a diagnosis, & some ways to cope soon. At least you have something to do w/your time while you wait. Get your mind in a better place & let the healing begin!
         
        08-28-2013, 08:54 PM
      #36
    Started
    Quote:
    Originally Posted by Cacowgirl    
    I hope you get a diagnosis, & some ways to cope soon. At least you have something to do w/your time while you wait. Get your mind in a better place & let the healing begin!
    Thank you :) I hope so too! Over all I'm doing a bit better, I'm just sick half of the time instead of all the time though I still have to rely on my mum to help me feed and cover the horses because by the time I walk 10m from my front door to the paddock with two feed buckets I'm pooped haha. I really appreciate that mum is actually willing to help me, and she told me the other day that she didn't realise how much I actually do with and for those horses until she had to start helping me, so that was nice.

    Yes, this is my second attempt at a sock bunny - my 9yo sister wanted one.. Just thought I would share it. My next project will be a sock horse and a sock monkey!
    1235033_10200724471529249_1281463658_n.jpg
         
        09-02-2013, 01:36 AM
      #37
    Foal
    If it makes you feel any better, I have a friend of a friend that has chrons disease, and he lives live perfectly fine :). Although I don't think he can drink beer, which is kind of a bummer, but there are worse things in life! I also watched this episode of mystery diagnosis on discovery health (I have since stopped watching the show because I'm already a hypochondriac and this show nearly made me have anxiety attacks every time I watch it). On the show this person had horrible symptoms and was sick for YEARS before she was finally diagnosed with chrons disease. Actually, after reading through all your posts I was wondering if it was chrons because I know it can be extremely painful if let un-diagnosed/untreated. Also the fact that you had a gastroscopy (or whatever its called/however you spell it) while AWAKE is unbelievable. I would have demanded some sort of sedative. I intern at a vet clinc and every time they do that on horses they are ALWAYS sedated. Understadably too, because I couldn't imagine an un-sedated horse putting up with that! Anyways, if you don't start getting answers soon then start DEMANDING them. Start researching your symptoms yourself and suggesting them to the doctors. Take your health into your own hands. Doctors learn a ton of information in medical school, and I'm sure they don't remember EVERYTHING. Maybe if you look up some information and share it with them, it might jog their memory. Google and google scholar are wonderful inventions

    Anyways, sorry for talking your ear off, and I really hope you get some answers and feel better soon!
         
        09-02-2013, 01:50 AM
      #38
    Foal
    Lives life* oopsies!

    Also: cute sock rabbit!
         
        09-02-2013, 04:48 AM
      #39
    Started
    Quote:
    Originally Posted by showjumperachel    
    If it makes you feel any better, I have a friend of a friend that has chrons disease, and he lives live perfectly fine :). Although I don't think he can drink beer, which is kind of a bummer, but there are worse things in life! I also watched this episode of mystery diagnosis on discovery health (I have since stopped watching the show because I'm already a hypochondriac and this show nearly made me have anxiety attacks every time I watch it). On the show this person had horrible symptoms and was sick for YEARS before she was finally diagnosed with chrons disease. Actually, after reading through all your posts I was wondering if it was chrons because I know it can be extremely painful if let un-diagnosed/untreated. Also the fact that you had a gastroscopy (or whatever its called/however you spell it) while AWAKE is unbelievable. I would have demanded some sort of sedative. I intern at a vet clinc and every time they do that on horses they are ALWAYS sedated. Understadably too, because I couldn't imagine an un-sedated horse putting up with that! Anyways, if you don't start getting answers soon then start DEMANDING them. Start researching your symptoms yourself and suggesting them to the doctors. Take your health into your own hands. Doctors learn a ton of information in medical school, and I'm sure they don't remember EVERYTHING. Maybe if you look up some information and share it with them, it might jog their memory. Google and google scholar are wonderful inventions

    Anyways, sorry for talking your ear off, and I really hope you get some answers and feel better soon!
    Hi :) That does help a bit, I've heard of a couple people who can live life normally with crohns so that is a positive, the prospect of the unknown is what scares me more, and having to take all of these medications just so I can eat a little and drink water is scary, since they aren't positive about what it is yet.
    I don't drink alcohol anyway so that's not a personal worry of mine, however I do enjoy the likes of chocolate, and KFC or McDonalds now and again, but I can't have any of that now, I've tried pizza on one occasion, and I had a couple chips from KFC last night and oh man that just wasn't worth it, even though the chips were amazing. I still feel horrible now 24 hours later, and because of that I missed out on roast chicken for dinner! (I love roast chicken)

    I think it's called a gastroendoscopy, but it's known here as an endoscopy for short. They did sedate me, but apparently they underestimated how much sedation I needed by a long shot. They told me the sedation would make me fall asleep and it "really is quite wonderful" -quote from the nurse who sedated me. Absolutely, I was working in a vet clinic while training to be a vet nurse, and anything involving sticking something down an animals throat would require either sedation or an induction agent first (main procedure being ET tubing, so that was done a lot)

    Demanding does nothing here in my little town, demanding gets you kicked out of the hospital (mum found out). I may go down to a bigger clinic an hour away, or to the capital city Wellington, and go to their hospital there if I don't get answers shortly. I'm with you on the not remembering everything, but we are talking about doctors who saw me with a dislocated shoulder blade one afternoon and had to google it! The same doctors who believe that if they can't figure out the cause within 2 days and a couple textbooks, then nothing is wrong and it's all in your head. That's why I liked the latest doctor I saw, because he was completely the opposite.

    I got a letter from the hospital stating that i'm on a waiting list for something (didn't state whether it was for a CT scan or a capsule endoscopy) and it could take up to FIVE MONTHS to get an appointment given to me, nuh uh no way I am not going through 5 months of this only to find out that it isn't what they thought it was and i'm right back at square one again. Hell will freeze over before I accept having to wait 5 months just for an appointment.
         
        09-02-2013, 08:50 AM
      #40
    Trained
    I would schedule the appointment in case you still need it then. Hopefully you can get something done before that.
    Skyseternalangel and 2BigReds like this.
         

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