Originally Posted by showjumperachel View Post
If it makes you feel any better, I have a friend of a friend that has chrons disease, and he lives live perfectly fine :). Although I don't think he can drink beer, which is kind of a bummer, but there are worse things in life! I also watched this episode of mystery diagnosis on discovery health (I have since stopped watching the show because I'm already a hypochondriac and this show nearly made me have anxiety attacks every time I watch it). On the show this person had horrible symptoms and was sick for YEARS before she was finally diagnosed with chrons disease. Actually, after reading through all your posts I was wondering if it was chrons because I know it can be extremely painful if let un-diagnosed/untreated. Also the fact that you had a gastroscopy (or whatever its called/however you spell it) while AWAKE is unbelievable. I would have demanded some sort of sedative. I intern at a vet clinc and every time they do that on horses they are ALWAYS sedated. Understadably too, because I couldn't imagine an un-sedated horse putting up with that! Anyways, if you don't start getting answers soon then start DEMANDING them. Start researching your symptoms yourself and suggesting them to the doctors. Take your health into your own hands. Doctors learn a ton of information in medical school, and I'm sure they don't remember EVERYTHING. Maybe if you look up some information and share it with them, it might jog their memory. Google and google scholar are wonderful inventions
Anyways, sorry for talking your ear off, and I really hope you get some answers and feel better soon!
Hi :) That does help a bit, I've heard of a couple people who can live life normally with crohns so that is a positive, the prospect of the unknown is what scares me more, and having to take all of these medications just so I can eat a little and drink water is scary, since they aren't positive about what it is yet.
I don't drink alcohol anyway so that's not a personal worry of mine, however I do enjoy the likes of chocolate, and KFC or McDonalds now and again, but I can't have any of that now, I've tried pizza on one occasion, and I had a couple chips from KFC last night and oh man that just wasn't worth it, even though the chips were amazing. I still feel horrible now 24 hours later, and because of that I missed out on roast chicken for dinner
! (I love roast chicken
I think it's called a gastroendoscopy, but it's known here as an endoscopy for short. They did sedate me, but apparently they underestimated how much sedation I needed by a long shot. They told me the sedation would make me fall asleep and it "really is quite wonderful" -quote from the nurse who sedated me
. Absolutely, I was working in a vet clinic while training to be a vet nurse, and anything involving sticking something down an animals throat would require either sedation or an induction agent first (main procedure being ET tubing, so that was done a lot)
Demanding does nothing here in my little town, demanding gets you kicked out of the hospital (mum found out
). I may go down to a bigger clinic an hour away, or to the capital city Wellington, and go to their hospital there if I don't get answers shortly. I'm with you on the not remembering everything, but we are talking about doctors who saw me with a dislocated shoulder blade one afternoon and had to google it! The same doctors who believe that if they can't figure out the cause within 2 days and a couple textbooks, then nothing is wrong and it's all in your head. That's why I liked the latest doctor I saw, because he was completely the opposite.
I got a letter from the hospital stating that i'm on a waiting list for something (didn't state whether it was for a CT scan or a capsule endoscopy) and it could take up to FIVE MONTHS
to get an appointment given to me, nuh uh no way I am not going through 5 months of this only to find out that it isn't what they thought it was and i'm right back at square one again. Hell will freeze over before I accept having to wait 5 months just for an appointment.