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odd bruising-kinda-thigh

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  • Odd blood marking on tigh
  • Blue bruises on the thigh

 
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    04-20-2011, 03:36 AM
  #11
Trained
Mine has always been fairly consistent. I've had it for as long as I can remember. The most that's gotten worse is the arthritis I'm developing because of it. I'm not sure if that's common with it, but from going untreated for probably 15 years or so and having harsh winters that last at least 6 months and being a kid that wants to play in the snow, I was brutal to my hands about it. Taking away the blood flow to my joints like that is taking effect. Mine is worse than my mom's though. She never had this problem.

However, I also have had a very hard time trying to cut caffeine out of my diet and eventually gave up. That makes a huge difference.

I would also recommend investing in some awesome mittens/gloves. I got these for Christmas: http://www.manzella.com/index.php/pr...detail/mzw-122 A bit pricey, but they're amazing. They're like a glove inside a fluffy mitten. Not a whole lot of dexterity for your fingers, but they certainly won't get cold.
     
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    04-20-2011, 03:45 AM
  #12
Weanling
I know last winter, at points I lost use of my hands as they so so sore I was out of the saddle for a month. I have noticed the marks on my thighs look scared now but aren't that intense colour and haven't been blue in a while but I think that's due to the temperature being warmer.
Does heat affect you too? I can't really cope with heat (mind you that be. Be scottish and not really seeing a lot of that glowing yellow thing in the sky!
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    04-20-2011, 03:46 AM
  #13
Weanling
I think the pain levels are hugely based on how you manage it. As I said in the PM - there is no 'treatment' or 'cure' , it is all based down to management. Blood thinners like caffine will allways make it worse as it lowers the oxygen levels in the blood flow which in turn slows the circulation in the afflicted areas. So like Posidon said - caffine is a big one. Smoking is another. Soda with high caffine content. Chocolate - anything like that - reading labels is good if your not sure.

If you don't effectively manage the triggers of the disease then the pain will get worse and will persistantly be worse until you start to remove the triggers. A good way to think about it is like an allergy - except an allergy to the cold haha , if you are allergic to pollen , and you are exposed to pollen you will feel the effects of it constantly until the pollen is removed from your system. With Raynauds , you will feel the effects of poor circulation and blood oxygen levels persistantly until you remove the triggers from your system / protect your body from the environmental triggers (the cold) It is just harder as there isnt an antihestimine that will protect you. The level of pain you feel is consistent with the way you manage the disease triggers.

Merino wool is your friend ;P
     
    04-20-2011, 03:48 AM
  #14
Weanling
Thanks guys. Think I need to go shopping!
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    04-20-2011, 03:50 AM
  #15
Trained
Those are seriously the only gloves I have been able to wear outside for an extended period of time without my hands getting cold. It was amazing. They were a bit spendy, but I love them. I have them in the "Platinum" colour, which is actually like a sky blue.

I would talk to your doctor about meds if you can. It'll make a big difference.
     
    04-20-2011, 03:54 AM
  #16
Weanling
:) - your much better to buy one really good quality pair of merino gloves , than lots of cheeper but sub par quality ones, at the end of the day it (at least for me) means the difference between being able to turn my key in the lock , and not being able to grip the key at all!!


Just don't wash them on a hot cycle!!! - my son now has a pair that fit him due to that , - was an expensive mistake!


Mine are pink and purple check :P , I have a burgandy pair for when I have to be 'dressy' hahaha
     
    04-20-2011, 04:03 AM
  #17
Weanling
Was thinking sealskinz glooves are very very good. Any ideas of wrapping up my legs as well?
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    04-20-2011, 04:12 AM
  #18
Weanling
Merino long johns :) or leg warmers (the knitted kind - cheap and easy to do if your handy with a set of needles !) for riding , paddock boots with leg warmers could be an option.
     
    04-20-2011, 10:23 AM
  #19
Trained
Heat doesn't bother me that much. We get really bloody hot summers, humid too. I don't take my meds or I'd be boiling. Since it's warm outside, my hands stay warm. They do get cold if I go inside any air conditioned place though. If I get warm in a warm building during the winter though, my hands can get bright red and ridiculously warm. My feet do the same thing because I work in a pool, but I'm required to wear closed-toed shoes. Hot feeeet.
     

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