To put it shortly: My health is a sucks. - Page 2
 
 

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To put it shortly: My health is a sucks.

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    06-15-2012, 01:19 PM
  #11
Yearling
Sorry to hear all that Sweety:( HUGS!!

If it makes you feel any better at all, I'm a walking pharmacy & occaisional research project as well, so you're not alone.

P.S. I personally had good luck w/ paxil during really stressful times, and it wasn't as habit forming as the lamictal. And when your brain doesn't want to shut of.....Yahtzee or Spider solitaire. Seriously, it works, lol
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    06-15-2012, 01:26 PM
  #12
Weanling
I wish I had the answers to make it all go away, but unfortunately I don't. However, sky is right..you have the forum people here who can listen & empathize with you! Going through tough times of any kind can hit hard but when it piles up like an avalanche its devastating. Your strength is there & you will get through this..all of it 1 day at a time! Horses are huge stress reducers...is there a barn near where you are that does therapeutic stuff for kids or a rescue...they always need volunteers. I know its not your horse (that I'm sure you miss terribly) but it would get you around horses & perhaps ease some of the stress.
     
    06-15-2012, 01:30 PM
  #13
Green Broke
I understand the eating thing I have chronic migraine and even with my medicine I can not eat full meals. I snack throughout the day and there are times I go all day without being able to willingly eat something, which makes for worse migraines. Im sorry to hear your having such a rough time though that does not sound good at all :/ I hope things start to settle for you soon! !
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    06-15-2012, 02:03 PM
  #14
Super Moderator
This sounds like way too much for a young person to bear. I wonder if your Aunt's having you there to help with your sister is helping or harming you. I mean, it does give you something other than the difficulties to focus on. Sometimes when we are most troubled with our own issues, having someone else to HELP , helps us. But, you , too, need someone to "mother" you. Guess you'll have to settle for some old mother hens on the forum.

Don't be too quick to assume that the Xanax and Paxil won't be good for you. It might be that by reducing the anxiety, the other symptoms (with the skin problems) will reduce, thus meaning less medication on that front. Depression runs in my family and I have felt antidepressants work. It seemed that they made me feel less "urgent" about my problems, which is helpful when there is nothing one can do about problems, so stressing over them is of no benefit.

I hope things take a turn for the better. You know the old expression, "This, too, shall pass." It's true for the good, and true for the bad.
Hugs,
Caroline
     
    06-15-2012, 02:19 PM
  #15
Super Moderator
Hugs Hugs Hugs!!
Your first responsibility is to you.
I know that may sound harsh, but if you are a medical mess, how can you possibly help anyone else?
I know it is hard to put yourself first and not your family, but honey all this stress is not helping you. You are not responsible for the things that are wrong with your family. ( I know, I have some family issues and it took many years to realize that they were not my fault.)

I can’t help but to think a second opinion from a more nutritionally or internal based doctor might be helpful, although with the moving/new living situation that may not be possible.
I know I have certainly argued with some neurologists about my son’s health, as not every “specialist” see things in the same way.

I agree with Skye about the shakes too. Maybe the meds are really affecting your body’s ability to absorb what you do eat and with the stress you are probably not making the best nutritional choices. I used to live in SC and am not sure what area you are located, but perhaps it is time for a trip to a good health food store. Some of the larger cities have some good ones along with a little bit more progressive thinking.
If you can, spend some time browsing the isles for a good all-round shake/supplement to give you the goodies your body is missing. I mean many of us make sure our horses get all the best nutrition they can down to the micro and macro minerals, but tend to forget about ourselves.

I’m not a vegan or anything, but some new studies have come out about some of the medical issues my son has, and how they are discovering the deep cellular level and the connection of nutrition, or lack of.
This has led me to actually start making my own green powders out of my organic spinach and veggies to make sure the nutritional boosts he needs (more so than other kids) is there for him.

Having gone on the journey that I have with my son and seeing first hand the affect of nutrition, it really can make a difference. Most modern foods are so deficient of the things our bodies need anymore it is like walking a food minefield when you have health issues.

Sorry, I didn’t mean to ramble….
More hugs… I really wish I could do something to help and I’m sorry you can’t spend time with your horses. If you are the type that outdoor hikes or time spent in nature helps to restore your soul, I can tell you about some nice places to visit and go walking, depending on with part of SC you are in.
     
    06-15-2012, 02:21 PM
  #16
Weanling
Sorry you are going through all of this. Have you thought about finding a therapist to talk to? Not that you have psychiologic issues or anything, but they are trained to listen and it seems like you really need that right now.

Also, find a barn to help out in. It won't be the same as riding your own horse, but horses are amazing therapists and finding a rescue who depends on you showing up and loving them and helping them can do amazing things.

Good luck and keep your spirits up.
     
    06-15-2012, 03:12 PM
  #17
Super Moderator
When my son was three (and still not talking, along with many developmental, GI, and autoimmune problems) one of the many doctors we were seeing thought an appointment with a nutritionist would be a good idea. So we did… a peds nutritionist out of an acclaimed children’s hospital, that we were at weekly for years.

She took the full history and all the meds he was on at the time and all the allergies he had and found this for him:

 

100_3207.jpg

 
Although it is hard to read, it is a juice type box with so many of the amino acids, proteins, and goodies he can’t get, make, or absorb from food or a diet.
It made a huge difference! This, plus removing foods that were known trouble foods for kids like him had him talking within 2 weeks and calmed many of his other medical reactions.

He still drinks three “juices” a day. When we run out (it’s an RX that needs a script for and is heavily controlled by insurance) it affects him quite a bit.

Can’t remember if you have ever mentioned working with a medical nutritionist, but maybe one (or someone similar) can sort out your meds, foods and what your body needs.

I also agree that talking with a therapist could be helpful too. When my son was at the height of his medical problems and I was so stressed I couldn’t function, it was helpful to talk to a neutral source.
     
    06-15-2012, 03:27 PM
  #18
Green Broke
Thank you all for reading all of that and understanding..I'm definitely open to trying anything now that could possibly work..Thanks for all of the hugs! They are much appreciated.

I think I just get so defensive with doctors and things because I'm just like "Oh great, what else is wrong with me?" and try to brush it off without really considering all of it...Bad habit of mine, I always assume I can fix whatever it is..I don't need any help..I've been that way my whole life.

I have to go to the store later and I' going to pick up somethings for shakes and stuff.. Also pick up the Ensure and try those..We'll see how this goes!
     
    06-15-2012, 05:47 PM
  #19
Foal
Smile

Hello - You are definitely way too young for the health problems you have and it does STINK! I can relate though because I've had medical issues since I was 25 years old. My problems were different, diagnosed with advanced endometriosis which resulted in many abdominal surgeries. This was after years and years of severe back and leg pain with no answers. Anyway, I know how you feel because you're sick of being sick, your family gets sick of you being sick and on and on and on! I'm now almost 58 and fortunately, have a wonderful husband. I still have medical issues, now multiple ones , but I guess what I'm wanting to say to you is don't just rely on your regular doctors who can get lost in the scheme of things. It's very easy to tell someone they've had a panic attack! Spare me! Check out something like MAYO CLINIC in Rochester, Mn. I know there are others (no names come to me offhand) but these places specialize in diagnosing and addressing the entire medical problem. Not just bits and pieces. I hope you have health insurance because that is another major stressor when you are sick, and you sure don't need any more stress. If you ever want to play cards in the early a.m., just let me know because I'm often still up at 2 a.m. Also! Hang in there and good luck to you. If you don't know the Serenity Prayer, check it out. It has helped me through the worst of times! Hugs to you!
     
    06-15-2012, 06:24 PM
  #20
Started
BIG hugs to you. We are all definitely behind you. I agree that maybe going to someone else, and finding out if there's a "common denominator" with all your symptoms (one big issue causing all the small issues which are what's being diagnosed), and maybe if you find that or if there is one big issue, taking care of or controlling that will help the smaller issues maybe without so much medication.

Most of our foods today are over processed, and lack the nutrition we really need. I have a friend who started something called Skinny Weighs (you can find it online), and she has lots of vegan, gluten free, raw (vegetable wise), foods, that are packed with the nutrition your body needs. Maybe something like that will help. Its such a catch 22, you have these problems which make you stressed as well as other life things in general, and then because you are stressed it makes your problems worse.

I think that maybe taking up meditation, or yoga, or something like that may help with the stress a bit, and obviously a good support base of friends, family ect. We are all here for you on HF, so please feel free to make posts, vent, ask questions ect. Have you looked into maybe volunteering at a local horse rescue, or find a barn where you can even just groom the horses, and get some one on one time with a horse or two or three. I know that horses have always kept me grounded, and kept me from completely losing it when things have gotten rough.

Again BIG hugs, and I hope that things start looking up soon, and you can find some great coping mechanisms that help you through things.
     

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