EHoD, can we start a fund for research on growing replacement bodies? This sounds like a good plan. In all seriousness, though, I hope you don't have any serious issues as well. The arthritis is bad enough, but knowing that your body is attacking itself where you can't see or feel it (at least early on) is the really tough part in my opinion. I was doing pretty well psychologically with the arthritis since I knew that it wasn't causing me permanent damage to move when it hurt (not destroying bone/cartilage for example) and I could just power through it, but internal organs are a whole different animal. I'm afraid that my battle may turn into one of quality vs quantity of life if my kidneys are further gone than we thought, and I wouldn't wish that on anyone. Being in our 20s only makes that harder. :/
HollyBubbles, thanks! I know you've been through a lot too. I'm actually about to go check up on your thread since I haven't in a few days.
Now I just can't wait to be able to get up and DO things! With the Predisone doing its job I'm feeling pretty good (though a bit fat in the face but whatever lol) but I can't really go anywhere due to the temporary risk of internal bleeding. I have an appointment on the 4th, though, and she said there was a possibility of returning to work at the restaurant for short shifts after that. I would absolutely love that, as my "stable" desk job has now dropped me... Thank gods my parents are taking care of my medical bills and vehicle repairs. I honestly don't know what I'd do if they weren't able to help me, aside from maybe going into massive piles of debt!!!