Upcoming Kidney Biopsy-Terrified! - Page 4
   

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Upcoming Kidney Biopsy-Terrified!

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        10-03-2013, 12:30 PM
      #31
    Weanling
    Results on Friday, fingers crossed for class 3 or better, doctor is expecting class 4... I'll be sure to update either way! On the upside, my nephrologist said that usually when lupus attacks the kidneys it leaves the other vital organs alone, which we're really hoping for.

    EHoD, can we start a fund for research on growing replacement bodies? This sounds like a good plan. In all seriousness, though, I hope you don't have any serious issues as well. The arthritis is bad enough, but knowing that your body is attacking itself where you can't see or feel it (at least early on) is the really tough part in my opinion. I was doing pretty well psychologically with the arthritis since I knew that it wasn't causing me permanent damage to move when it hurt (not destroying bone/cartilage for example) and I could just power through it, but internal organs are a whole different animal. I'm afraid that my battle may turn into one of quality vs quantity of life if my kidneys are further gone than we thought, and I wouldn't wish that on anyone. Being in our 20s only makes that harder. :/

    HollyBubbles, thanks! I know you've been through a lot too. I'm actually about to go check up on your thread since I haven't in a few days.

    Now I just can't wait to be able to get up and DO things! With the Predisone doing its job I'm feeling pretty good (though a bit fat in the face but whatever lol) but I can't really go anywhere due to the temporary risk of internal bleeding. I have an appointment on the 4th, though, and she said there was a possibility of returning to work at the restaurant for short shifts after that. I would absolutely love that, as my "stable" desk job has now dropped me... Thank gods my parents are taking care of my medical bills and vehicle repairs. I honestly don't know what I'd do if they weren't able to help me, aside from maybe going into massive piles of debt!!!
    EvilHorseOfDoom likes this.
         
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        10-03-2013, 07:06 PM
      #32
    Weanling
    Glad to hear everything went well! Keep us updated. Best of luck
         
        10-04-2013, 11:04 AM
      #33
    Weanling
    At the risk of being told once again by the professional nurse that my advice is not supportive.....I'm going to say it anyway.

    You can HEAL from what is afflicting you. Real healing. Just do the research. And it doesn't matter that you have this or that, it's pretty much all the same in the end, and the healing takes place in the same way. Get rid of the internal obstructions, and nourish the body. If you find that you would like more support, then my suggestion would be to contact Dr. Morse directly. And get on the FB fan page that was created by people who followed his advice and healed, for even more support.

    Okay....I'll try not to bother you with this information from here on out. But I just felt compelled to say it at least one more time.
         
        10-04-2013, 01:52 PM
      #34
    Weanling
    Okay, so I'm at stage 4, but do not have a lot of fibrosis (scarring, I think?) which is apparently a very good thing, and means that there is little permanent damage so we should be able to get me back to nearly normal. Initially they were talking about a long-term prednisone regimen, but my doctor has decided that this will not likely be necessary. Phew. The new immunosuppressant that they are switching me to won't allow me to get pregnant while I'm on it, but I don't want two-leggeds anyway and I'm certainly not in the right spot to do so even if I did!

    All in all, probably the best news I could've asked for aside from, "just kidding, your lupus is gone!" Though then I guess I would've had to ask about the incision and ice-filled tub that I woke up in on Monday afternoon...
    CLaPorte432 and MissingStar like this.
         
        10-13-2013, 08:06 PM
      #35
    Started
    That's great news that it hasn't progressed too far, 2BigReds! Must be a massive relief for you. Does the immunosuppressant have any other side-effects?

    Oh yes, wouldn't it be awesome if our autoimmune diseases just magically went away eh? Or we could just grow another body part when we lost one! What I'm essentially saying is I want to be a Time Lord haha!

    My arthritis has flared up in my hands now, my knuckles are noticeably bigger. And more painful. Blah! That on top of three mental illnesses...oh to be a healthy 25yo, with a new brain, new lungs, new heart and new joints! In saying that I think I'm ageing early lol, have 3 grey hairs already and put my back out the other day while getting dressed - where's the Fountain of Youth? Quick!
         
        10-14-2013, 10:30 AM
      #36
    Weanling
    EHOD oh geez! Haha putting your back out while getting dressed is pretty bad lol. I've thrown out my hip before when a certain SOMEONE tried to walk off when I was mounting him bareback... Little s**t lol.

    Well I'm not on the full dose of Cellcept yet, but I'm 2/3 there and no side effects yet. It'll be hard to tell for awhile since getting off of Prednisone can sometimes do weirdo things to ya, but I really just can't wait to be off the stuff. 3 months till I'm off it completely, they said, fingers crossed!!!

    Aside from the actual biopsy part, the kidney flare might've been a blessing in disguise. Yes I felt absolutely awful and nearly unable to function for nearly 6 weeks straight, but since starting on Cellcept? I honestly don't remember the last time I was pain free like this. Probably early high school years. It is incredibly freeing, and it would be pretty tough for the lupus to flare up in my kidneys enough to do more damage since we're watching things much more closely now. If I continue to feel this good, I may not even bother with the handicapped privileges at Disneyland next month! Went on a long hike on Saturday with my man (still in San Diego, headed back home in a bit but we had a lovely weekend) and I was practically bouncing off the walls I felt so good. Now just to find another job... Haha
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        10-14-2013, 08:19 PM
      #37
    Started
    Haha, I put out my hip riding Brock at the walk because he was too fat one summer. Weird injuries LOL!

    I'm glad you've found a drug that works for you - it can be a real struggle and very disheartening trying out different ones. And now hopefully you can get back to living your life! Once you've gone to Disneyland that is But you must be so happy to be able to be pain-free, and it'll help your overall health as well. It's funny how you don't appreciate a pain-free life until you're in constant pain!

    I completely gave up on antidepressants and mood stabilisers as I was experiencing all the nasty side effects (splitting headaches, dry mouth, messed up sleep, paranoid psychosis, even being cross-eyed!) and was told I'd have to wait for up to 6 months before I'd start experiencing any benefit. Blah! At $35/mth it just wasn't worth it. With the RA I'm only taking NSAIDs, and only when I get a flare up, but I think this will be a growing problem for me in the next few years as it's becoming more frequent, more painful and more widespread.
         
        10-15-2013, 09:14 AM
      #38
    Showing
    Evil, instead of taking antidepressants, I opted to try light therapy. The special lamp I am using is placed about 20" from my eyes for 20 min. I don't look directly at it but it is to the side of the computer monitor. It is on now as I type. I noticed an immediate improvement after the first session. Each year as the sun gets lower so does my state of mind. Desire to do anything goes with it. Not a good way to live for 6 mos. As we have many dark overcast days during winter as well. Now the interest in doing thing has returned even tho we will soon be heading in to winter.
         
        10-15-2013, 07:14 PM
      #39
    Started
    Quote:
    Originally Posted by Saddlebag    
    Evil, instead of taking antidepressants, I opted to try light therapy. The special lamp I am using is placed about 20" from my eyes for 20 min. I don't look directly at it but it is to the side of the computer monitor. It is on now as I type. I noticed an immediate improvement after the first session. Each year as the sun gets lower so does my state of mind. Desire to do anything goes with it. Not a good way to live for 6 mos. As we have many dark overcast days during winter as well. Now the interest in doing thing has returned even tho we will soon be heading in to winter.
    Thanks Saddlebag I will try that! It's cheap I'm guessing which suits me well as dialectical behaviour therapy is way out of my budget I'm afraid. Do you struggle with Seasonal Affective Disorder (the very apt acronym SAD)? I certainly know I'm worse in the evenings/at night although very lucky our nights aren't as long as yours are in Canada. Also worse on gloomy days. I'm keen for anything that will help lift my mood. Fighting bipolar and borderline personality disorder AND anxiety is not much fun I'm afraid, but if I can just improve the depressive moments a tiny fraction and reduce my anxiety levels to something more normal I think I can get through. Certainly taking a sedative has helped reduce my rages and psychosis. I know, you're probably ready to put me in a straitjacket after reading this!
         

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